Pursuing Public Health Benefit Within National Genomic Initiatives: Learning From Different Policies.

🤖 Plain-English Summary

Population-based genomic research is expected to deliver substantial public health benefits. Yet, universal tools to measure public health benefit and clarity in roles and responsibilities of collaborating stakeholders are lacking.

🔑 Key Findings

• National genomics initiatives are widespread, with large-scale collection and research of human genomic data.
• To date, little is known about the actual public health benefit that is yielded from such initiatives.
• In this study, we explore how public health benefit is being pursued in a selection of national genomics initiatives.

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