Expanding the Agenda for a More Just Genomics.

🤖 Plain-English Summary

The integration of genomics into public health and medicine is happening at a faster rate than the accrual of the capabilities necessary to ensure the equitable, global distribution of its clinical benefits. These features of genomics indebt the genomics enterprise and compel the expanded scope of responsibility proposed by the authors of this special report.

🔑 Key Findings

• Uneven access to genetic testing and follow-up care, unequal distribution of the resources required to access and participate in research, and underrepresentation of some descent groups in genetic and clinical datasets (and thus uncertain genetic results for some patients) are just some of the reasons to center justice in genomics.
• A more just genomics is an imperative rooted in the ethical obligations incurred by a publicly funded science that is reliant on human data.
• These features of genomics indebt the genomics enterprise and compel the expanded scope of responsibility proposed by the authors of this special report.

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