Nothing about Us without Us in Precision Medicine: A Call to Reframe Disability Difference in Genetics and Genomics.

Sixty-one million Americans and approximately a billion people worldwide live with some form of disability that limits one or more major life activities. We appeal to the concepts of recognition justice and distributive justice to argue that the ELSI community should take a more proactive role in promoting disability inclusion in precision medicine's practice and research.

⚡ This is an original paraphrased summary — not copied from the abstract. Full paper available at the source link below.

• 1 The field of precision medicine continues to grapple with how to best serve disability communities.
• 2 In this paper, we suggest that precision medicine faces an ethical tension between its goal to treat or cure disabling conditions and views that consider disability as a marginalized identity.
• 3 We appeal to the concepts of recognition justice and distributive justice to argue that the ELSI community should take a more proactive role in promoting disability inclusion in precision medicine's practice and research.

Understanding this could lead to better treatments, improved diagnostics, or a deeper grasp of how the human body works — benefiting patient care globally.

This summary is based on publicly available metadata and abstract. For the full research paper, visit the original source: